On Thursday, October 24, students and faculty at Tampa Prep wore purple to show support for those affected by Cystic Fibrosis (CF). This genetic condition impacts the CFTR protein, which regulates mucus and sweat production. When mutated, the CFTR protein causes thick, sticky mucus to build up, leading to blockages, damage, and infections in organs. In the United States, more than 40,000 people live with CF.
At Tampa Prep, Prealgebra teacher and Assistant Head of the Middle School Nate Wolkenhauer has organized the annual Wear Purple for CF Day for the past two years. Wolkenhauer started the tradition to support his nephew, Aden, who was diagnosed with CF at a young age.
“He wears a vest every evening and takes enzymes to fill the void that the disease has taken from him,” Wolkenhauer said. “Aden and my sister have been advocating more heavily in the last couple years.”
Wolkenhauer isn’t the only member of the Tampa Prep community with a personal connection to CF. History teacher Ms. Jago shared the story of a Tampa Prep alum and close friend who also battled the disease.
“My friend was on oxygen,” Jago said. “He couldn’t add 2 + 2 because he was so oxygen deprived.”
While CF is a challenging diagnosis, there is hope for the future. “From what the doctors are saying, and what the research is saying, in our lifetime there will be a cure for CF,” Jago added.
Over the last decade, researchers have made significant strides toward a cure, but advocacy and awareness remain critical. Groups like the CF Foundation and #RoseUpCF are vital in spreading knowledge and raising funds to support ongoing research.
“Advocacy is so important, so we can continue to raise money and awareness for what CF is, and to keep that train moving,” Wolkenhauer said.
Cystic Fibrosis is a rare disease without widespread recognition or a dedicated awareness month, making events like Tampa Prep’s Wear Purple for CF Day crucial in the fight for a cure.